The Lived Experience of Hospitalized Pregnant Women Having Antiphospholipid Syndrome with a Previous Fetal Loss: A Phenomenological Study

Fatma Zaghloul Mahmoud; Yousria Ahmed Elsayed; Abeer Saad Eswi

doi:doi:10.11648/j.rs.20200501.12

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The Lived Experience of Hospitalized Pregnant Women Having Antiphospholipid Syndrome with a Previous Fetal Loss: A Phenomenological Study

Fatma Zaghloul Mahmoud, Yousria Ahmed Elsayed, Abeer Saad Eswi

Published in Rehabilitation Science (Volume 5, Issue 1)

Received: 12 September 2019 Accepted: 17 October 2019 Published: 3 September 2020

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Abstract

Background: antiphospholipid syndrome is a disorder of the immune system that is characterized by poor obstetric outcome. Women with this disorder may experience devastating problems during pregnancy. Aim: to explore the lived experience of hospitalizedpregnant women having antiphospholipid syndrome with a previous fetal loss. Design: A phenomenological qualitative research design was used with purposive sample of 15 participants. Setting: the high-risk pregnancy department at obstetrics and gynecology hospital which is affiliated to Cairo University Hospitals. Data were collected through semi-structured questionnaire using digital voice recording. Results: uncertainty was the core concept that reflected the experience of the pregnant women under study. This was represented in three major phases: uncertainty before diagnosis with APS, uncertainty after diagnosis, and uncertainty during hospitalization. Seven themes emerged from the data analysis as consequence to uncertainty as follows: living in uncertainty; social burden; psychological suffering; fear of the unknown; stressful hospitalization; threats; and unsettled quality of life. Conclusion: women with antiphospholipid perceived the need to provide them with informational support due to the confused state of mind, threats, lack of knowledge and understanding they expose before and after being diagnosed with APS, and during hospitalization. Recommendation: providing informational support for these women is necessary to meet their needs, improve clinical practice and reduce the negatives consequences of this condition for women during childbearing period.

Published in	Rehabilitation Science (Volume 5, Issue 1)
DOI	10.11648/j.rs.20200501.12
Page(s)	5-11
Creative Commons	This is an Open Access article, distributed under the terms of the Creative Commons Attribution 4.0 International License (http://creativecommons.org/licenses/by/4.0/), which permits unrestricted use, distribution and reproduction in any medium or format, provided the original work is properly cited.
Copyright	Copyright © The Author(s), 2020. Published by Science Publishing Group

Keywords

Antiphospholipid Syndrome, Fetal Loss, Qualitative Research

References

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[3]	Rawhya R, Zein E, Rashad A, Ibrahim T, et. al. (2016): Catastrophic Antiphospholipid Syndrome in Egypt: Hindawi Publishing Corporation Case Reports in Rheumatology. Volume 20, Article ID 4161439, 4 pages http://dx.doi.org/10.1155/2016.
[4]	Cervera R. Antiphospholipid syndrome. (2017): Thromb Res. Mar. 151 (1): S43-S47. [Medline].
[5]	Sebastiani GD, Iuliano A, Cantarini L, Galeazzi M. (2016): Genetic aspects of the antiphospholipid syndrome: An update. Autoimmune. Rev 15 (5): 433-9. Doi 10.1016/j.autrev.2016.01.005. Epub 2016 Jan 21.
[6]	Abdel-Wahab N, Lopez-Olivo M, Pinto-Patarroyo GP, Suarez-Almazor ME. (2016): Systematic review of case reports of antiphospholipid syndrome following infection. Lupus. (25), 1520–1531.
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[8]	Meaney S, Corcoran P, Spillane N, et. al. (2017): Experience of miscarriage: an interpretative phenomenological analysis. BMJ Open. 7: e011382. doi: 10.1136/bmjopen-2016- 011382.
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[12]	Radford and Hughes (2015), women’s experiences of early miscarriages: implication of nursing care, Journal ofclinical nursing. 24, 1457–1465 doi: 10.1111/jocn.12781, John Wiley & sons Ltd.
[13]	Abdel Nabi E. (2017). Effect Of Emotional Support On Perceived Stress Among Hospitalized High Risk Pregnant Women. (Unpublished master thesis). Faculty of Nursing, Cairo university.
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[15]	Andreoli L, Bertsias GK, Agmon-Levin, Brown s, Cervera R, Costedoat-Chalumeau N Doria A, Fischer-Betz, Forger R et. al. (2017). EULAR recommendations for women’s health and the management of family planning, assisted reproduction, pregnancy and menopause in patients with systemic lupus erythematosus and/or antiphospholipid syndrome. Ann Rheum Dis; 76: 4 doi: 10.1136/annrheumdis-2016-209770.

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Fatma Zaghloul Mahmoud, Yousria Ahmed Elsayed, Abeer Saad Eswi. (2020). The Lived Experience of Hospitalized Pregnant Women Having Antiphospholipid Syndrome with a Previous Fetal Loss: A Phenomenological Study. Rehabilitation Science, 5(1), 5-11. https://doi.org/10.11648/j.rs.20200501.12

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ACS Style

Fatma Zaghloul Mahmoud; Yousria Ahmed Elsayed; Abeer Saad Eswi. The Lived Experience of Hospitalized Pregnant Women Having Antiphospholipid Syndrome with a Previous Fetal Loss: A Phenomenological Study. Rehabil. Sci. 2020, 5(1), 5-11. doi: 10.11648/j.rs.20200501.12

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AMA Style

Fatma Zaghloul Mahmoud, Yousria Ahmed Elsayed, Abeer Saad Eswi. The Lived Experience of Hospitalized Pregnant Women Having Antiphospholipid Syndrome with a Previous Fetal Loss: A Phenomenological Study. Rehabil Sci. 2020;5(1):5-11. doi: 10.11648/j.rs.20200501.12

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@article{10.11648/j.rs.20200501.12,
  author = {Fatma Zaghloul Mahmoud and Yousria Ahmed Elsayed and Abeer Saad Eswi},
  title = {The Lived Experience of Hospitalized Pregnant Women Having Antiphospholipid Syndrome with a Previous Fetal Loss: A Phenomenological Study},
  journal = {Rehabilitation Science},
  volume = {5},
  number = {1},
  pages = {5-11},
  doi = {10.11648/j.rs.20200501.12},
  url = {https://doi.org/10.11648/j.rs.20200501.12},
  eprint = {https://article.sciencepublishinggroup.com/pdf/10.11648.j.rs.20200501.12},
  abstract = {Background: antiphospholipid syndrome is a disorder of the immune system that is characterized by poor obstetric outcome. Women with this disorder may experience devastating problems during pregnancy. Aim: to explore the lived experience of hospitalizedpregnant women having antiphospholipid syndrome with a previous fetal loss. Design: A phenomenological qualitative research design was used with purposive sample of 15 participants. Setting: the high-risk pregnancy department at obstetrics and gynecology hospital which is affiliated to Cairo University Hospitals. Data were collected through semi-structured questionnaire using digital voice recording. Results: uncertainty was the core concept that reflected the experience of the pregnant women under study. This was represented in three major phases: uncertainty before diagnosis with APS, uncertainty after diagnosis, and uncertainty during hospitalization. Seven themes emerged from the data analysis as consequence to uncertainty as follows: living in uncertainty; social burden; psychological suffering; fear of the unknown; stressful hospitalization; threats; and unsettled quality of life. Conclusion: women with antiphospholipid perceived the need to provide them with informational support due to the confused state of mind, threats, lack of knowledge and understanding they expose before and after being diagnosed with APS, and during hospitalization. Recommendation: providing informational support for these women is necessary to meet their needs, improve clinical practice and reduce the negatives consequences of this condition for women during childbearing period.},
 year = {2020}
}

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TY  - JOUR
T1  - The Lived Experience of Hospitalized Pregnant Women Having Antiphospholipid Syndrome with a Previous Fetal Loss: A Phenomenological Study
AU  - Fatma Zaghloul Mahmoud
AU  - Yousria Ahmed Elsayed
AU  - Abeer Saad Eswi
Y1  - 2020/09/03
PY  - 2020
N1  - https://doi.org/10.11648/j.rs.20200501.12
DO  - 10.11648/j.rs.20200501.12
T2  - Rehabilitation Science
JF  - Rehabilitation Science
JO  - Rehabilitation Science
SP  - 5
EP  - 11
PB  - Science Publishing Group
SN  - 2637-594X
UR  - https://doi.org/10.11648/j.rs.20200501.12
AB  - Background: antiphospholipid syndrome is a disorder of the immune system that is characterized by poor obstetric outcome. Women with this disorder may experience devastating problems during pregnancy. Aim: to explore the lived experience of hospitalizedpregnant women having antiphospholipid syndrome with a previous fetal loss. Design: A phenomenological qualitative research design was used with purposive sample of 15 participants. Setting: the high-risk pregnancy department at obstetrics and gynecology hospital which is affiliated to Cairo University Hospitals. Data were collected through semi-structured questionnaire using digital voice recording. Results: uncertainty was the core concept that reflected the experience of the pregnant women under study. This was represented in three major phases: uncertainty before diagnosis with APS, uncertainty after diagnosis, and uncertainty during hospitalization. Seven themes emerged from the data analysis as consequence to uncertainty as follows: living in uncertainty; social burden; psychological suffering; fear of the unknown; stressful hospitalization; threats; and unsettled quality of life. Conclusion: women with antiphospholipid perceived the need to provide them with informational support due to the confused state of mind, threats, lack of knowledge and understanding they expose before and after being diagnosed with APS, and during hospitalization. Recommendation: providing informational support for these women is necessary to meet their needs, improve clinical practice and reduce the negatives consequences of this condition for women during childbearing period.
VL  - 5
IS  - 1
ER  -

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Author Information

Fatma Zaghloul Mahmoud

Maternal and Newborn Health Nursing, Faculty of Nursing, Cairo University, Cairo, Egypt
Yousria Ahmed Elsayed

Maternal and Newborn Health Nursing, Faculty of Nursing, Cairo University, Cairo, Egypt
Abeer Saad Eswi

Maternal and Newborn Health Nursing, Faculty of Nursing, Cairo University, Cairo, Egypt

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APA Style

Fatma Zaghloul Mahmoud, Yousria Ahmed Elsayed, Abeer Saad Eswi. (2020). The Lived Experience of Hospitalized Pregnant Women Having Antiphospholipid Syndrome with a Previous Fetal Loss: A Phenomenological Study. Rehabilitation Science, 5(1), 5-11. https://doi.org/10.11648/j.rs.20200501.12

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ACS Style

Fatma Zaghloul Mahmoud; Yousria Ahmed Elsayed; Abeer Saad Eswi. The Lived Experience of Hospitalized Pregnant Women Having Antiphospholipid Syndrome with a Previous Fetal Loss: A Phenomenological Study. Rehabil. Sci. 2020, 5(1), 5-11. doi: 10.11648/j.rs.20200501.12

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AMA Style

Fatma Zaghloul Mahmoud, Yousria Ahmed Elsayed, Abeer Saad Eswi. The Lived Experience of Hospitalized Pregnant Women Having Antiphospholipid Syndrome with a Previous Fetal Loss: A Phenomenological Study. Rehabil Sci. 2020;5(1):5-11. doi: 10.11648/j.rs.20200501.12

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@article{10.11648/j.rs.20200501.12,
  author = {Fatma Zaghloul Mahmoud and Yousria Ahmed Elsayed and Abeer Saad Eswi},
  title = {The Lived Experience of Hospitalized Pregnant Women Having Antiphospholipid Syndrome with a Previous Fetal Loss: A Phenomenological Study},
  journal = {Rehabilitation Science},
  volume = {5},
  number = {1},
  pages = {5-11},
  doi = {10.11648/j.rs.20200501.12},
  url = {https://doi.org/10.11648/j.rs.20200501.12},
  eprint = {https://article.sciencepublishinggroup.com/pdf/10.11648.j.rs.20200501.12},
  abstract = {Background: antiphospholipid syndrome is a disorder of the immune system that is characterized by poor obstetric outcome. Women with this disorder may experience devastating problems during pregnancy. Aim: to explore the lived experience of hospitalizedpregnant women having antiphospholipid syndrome with a previous fetal loss. Design: A phenomenological qualitative research design was used with purposive sample of 15 participants. Setting: the high-risk pregnancy department at obstetrics and gynecology hospital which is affiliated to Cairo University Hospitals. Data were collected through semi-structured questionnaire using digital voice recording. Results: uncertainty was the core concept that reflected the experience of the pregnant women under study. This was represented in three major phases: uncertainty before diagnosis with APS, uncertainty after diagnosis, and uncertainty during hospitalization. Seven themes emerged from the data analysis as consequence to uncertainty as follows: living in uncertainty; social burden; psychological suffering; fear of the unknown; stressful hospitalization; threats; and unsettled quality of life. Conclusion: women with antiphospholipid perceived the need to provide them with informational support due to the confused state of mind, threats, lack of knowledge and understanding they expose before and after being diagnosed with APS, and during hospitalization. Recommendation: providing informational support for these women is necessary to meet their needs, improve clinical practice and reduce the negatives consequences of this condition for women during childbearing period.},
 year = {2020}
}

Copy | Download

TY  - JOUR
T1  - The Lived Experience of Hospitalized Pregnant Women Having Antiphospholipid Syndrome with a Previous Fetal Loss: A Phenomenological Study
AU  - Fatma Zaghloul Mahmoud
AU  - Yousria Ahmed Elsayed
AU  - Abeer Saad Eswi
Y1  - 2020/09/03
PY  - 2020
N1  - https://doi.org/10.11648/j.rs.20200501.12
DO  - 10.11648/j.rs.20200501.12
T2  - Rehabilitation Science
JF  - Rehabilitation Science
JO  - Rehabilitation Science
SP  - 5
EP  - 11
PB  - Science Publishing Group
SN  - 2637-594X
UR  - https://doi.org/10.11648/j.rs.20200501.12
AB  - Background: antiphospholipid syndrome is a disorder of the immune system that is characterized by poor obstetric outcome. Women with this disorder may experience devastating problems during pregnancy. Aim: to explore the lived experience of hospitalizedpregnant women having antiphospholipid syndrome with a previous fetal loss. Design: A phenomenological qualitative research design was used with purposive sample of 15 participants. Setting: the high-risk pregnancy department at obstetrics and gynecology hospital which is affiliated to Cairo University Hospitals. Data were collected through semi-structured questionnaire using digital voice recording. Results: uncertainty was the core concept that reflected the experience of the pregnant women under study. This was represented in three major phases: uncertainty before diagnosis with APS, uncertainty after diagnosis, and uncertainty during hospitalization. Seven themes emerged from the data analysis as consequence to uncertainty as follows: living in uncertainty; social burden; psychological suffering; fear of the unknown; stressful hospitalization; threats; and unsettled quality of life. Conclusion: women with antiphospholipid perceived the need to provide them with informational support due to the confused state of mind, threats, lack of knowledge and understanding they expose before and after being diagnosed with APS, and during hospitalization. Recommendation: providing informational support for these women is necessary to meet their needs, improve clinical practice and reduce the negatives consequences of this condition for women during childbearing period.
VL  - 5
IS  - 1
ER  -

Copy | Download